ozED
Mission &
Vision
Mission
- ozED will advocate with professionals on members behalf requiring support.
- ozED will provide support and referral advice to all persons and families that are diagnosed with Ectodermal Dysplasia.
- ozED will provide advice and information to health care professionals to assist in provision of quality care being provided to people and families affected by Ectodermal Dysplasia.
- ozED will not categorise or prioritise any forms of Ectodermal Dysplasia and recognise all of the Ectodermal Dysplasia as equal.
- ozED will conduct its business, including fundraising, political lobbying and international liaisons in the highest professional manner.
Vision
To embrace and empower a nurturing Ectodermal Dysplasia community through advocacy, support and connection.
In the past we have advocated in the following areas:
- Centrelink
- NDIS
- Various states air conditioning
- Dental departments
