When our son was born he had 10 fingers, 10 toes, everything was great. As he grew I noticed he wasn’t getting teeth. He would be fine one minute and the next minute he would have high temperatures. As new parents we put this down to teething but the teeth never came. When he was […]

The McCulloch Family Story ‘I don’t think he will get any teeth and I think he might have a condition called Ectodermal Dysplasia.’ Those words changed our lives forever. Owen was born in 2004. He was a quiet, beautiful baby; perfect in every way. He was 3 weeks early and went into the special care

SKEVOS’S STORY & OUR FIRST OZED CAMPHRENCE Skevos’s story started out just like any other story. The perfect little baby who fed well, was always normal on the growth charts and in general was a happy baby! We were also happy that he had this beautiful fine blonde hair and perfect shaped face. Neighbours were