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Welcome to our OzED Support Group

The Ectodermal Dysplasia support group is not a charity. We are a NON-for-Profit support group here for families & friends who have or know some with Ectodermal Dysplasia. We are one massive family dedicated to improving the health and well-being of people whose lives are affected by Ectodermal Dysplasia (ED).  Together with support people who have ED & their families, to increase awareness and understanding, and assist with the day-to-day management of ED in a social environment.

We have families all over Australia.

The ectodermal dysplasias are inherited disorders that involve defects in the hair, nails, sweat glands and teeth.

When a person has at least two types of abnormal ectodermal features—for example, malformed teeth and extremely sparse hair—the individual is identified as being affected by ectodermal dysplasia.

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Credit to Essential Energy for your support & donations

Purple Soup – Adventure Therapy. We cannot thank you enough for your continued efforts. 

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