Our Vision – ‘To embrace and empower a nurturing Ectodermal Dysplasia community through advocacy, support and connection.’



Welcome to our OzED Support Group

OzED is a charity registered with the Australian Charities and Not-for-profits Commission. We are a NOT-for-Profit support group here for families & friends who have or know someone with Ectodermal Dysplasia. We are one massive family dedicated to improving the health and well-being of people whose lives are affected by Ectodermal Dysplasia (ED).  Together with support people who have ED & their families, to increase awareness and understanding, and assist with the day-to-day management of ED in a social environment.

We have families all over Australia.

The ectodermal dysplasias are inherited disorders that involve defects in the hair, nails, sweat glands and teeth.

When a person has at least two types of abnormal ectodermal features—for example, malformed teeth and extremely sparse hair—the individual is identified as being affected by ectodermal dysplasia.

With thanks to Digital Pacific.

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Benz Insulation Services – We Thank You

Designed to Delight – Thank You Whirlpool

With Thanks to Euro-Aus Mechanical Repairs

Many Thanks for Your Awesome Work – Brisbane Web & Hosting

Many Thanks to Brisbane Roller Doors


Credit to Essential Energy for your support & donations

Purple Soup – Adventure Therapy. We cannot thank you enough for your continued efforts. 

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